Leister, Wolfgang; Fongen, Camilla; Soldal, Dag; Hagen, Kåre Birger; Schulz, Trenton; Bai, Aleksander; Chen, Liming; Franke, Carl-Henrik; Tjøstheim, Ingvar; Boye, Lars Thomas; Berre, Vebjørn; Østerås, Nina; Hagfors, Jon; Relbe-Moe, Jan Halvard; Dagfinrud, Hanne
We developed a concept including a set of tools for self-management for patients suffering from axial spondyloarthritis (SpA). This concept involves patient-recorded outcome measures, both subjective assessment and clinical measurements, that are used to present recommendations. We report from experiences made while implementing a proof of this concept. Besides giving the patient a self-management tool, our work also improved the methodology for clinical measurements.